What does our European registry include, and why is it relevant for both clinical researchers and burn survivors?
Our registry is a secure digital platform designed for burn clinical researchers to register, collaborate, and contribute their expertise to help shape the research landscape and advance burn care. It also empowers burn survivors to become active partners in clinical study design, data interpretation, and the sharing of results — promoting inclusive, meaningful, and impactful research collaborations.
Why such registry is needed?
By collecting and analyzing standardized data across multiple centers, the registry helps identify best practices, track long-term outcomes, and improve the quality and safety of burn treatments.
This topic is mainly being worked on in COST ACTION Working Group 4. For further details on this specific topic, please contact Philippe Abdel-Sayed directly (Philippe.Abdel-sayed@chuv.ch) or use the contact options here.